Have you ever pitched your patient journey to the media? Share your experiences (the good, the bad and the ugly) and feel free to offer any advice or words of encouragement to your fellow patient leaders!
I have pitched my journey to the media. Just this past year, I had a television interview and a news paper interview. I guess I would say, make sure its a good pitch because the news anchors and writers need to get the approval from their producers or editors. Make sure you use a jaw dropping story and do not get discouraged if no one replies. I kept in mind, all I could do was at least ask.
I had reached out to one of the local news channels and I was lucky enough to be interviewed! I believe It’s SO important to always be real, honest, genuine, and authentic. Believe you can do it and you will!
I have not, but reading the responses makes me absolutely agree with what was said in the dealing with media section of Patient Leadership.
If you are looking to be featured in a national magazine, we are looking for people to share their health journey in iPain Living Magazine. We are currently looking for stories in our Fall and Winter editions (Oct. and Jan). email me if you are interested email@example.com
Congrats Mikayla and good points
I had connected with a local news channel and they actually came to interview me last May 2018!
May is Lyme disease awareness month so I asked them to help me spread awareness and they were so kind!
I reached out to ask to interview a local news anchor with MS for my podcast. She agreed, we had a great interview and then just kept in touch. When MS Awareness Month rolled around, she reached to To interview ME! I got a LOT in newsletter and social media sign ups - and product sales (ebook) from that one exposure!
Hi thats awesome to hear all of these positive experiences with media. I have sent my press release out prior to health events and the release of my book to gain exposure and sometimes its been favorable responses through television and radio. Because of my affiliation with the American Heart Association I’ve been blessed to have my story in Essence and a few other major publications. I find just using that in my bio gets the attention of smaller media brands.
I haven’t pitched my story, but I’ve been thinking about it ever since #HealtheVoices19!
I began getting involved within the CF Community again back in 2014 once I moved to the Bay Area. One way I was able to share my story was by being apart of the ‘CF Community Blog’. I sent an email introducing myself and sharing a snippet of my story. I then gave a few topics on what I could write about and we set up a phone meeting and discussed what would be the most important and appropriate topic for me to write about.
I’ve done three blog posts so far for the CF Community Blog!
I have had pieces published in local media and magazines about my story. I also have had media coverage of a awareness walk I hosted 2 years in a row. I am currently looking to try and broadcast further than my local areas.
I have thought about doing a press release with my story and the intention of promoting my podcast but I just haven’t gotten around to it. I am a frequent blogger for the Brain & Life magazine/website so I tell a little of my story each time. I’ve written articles for a couple of other magazines.
I have worked with different media outlets to get the word out about lupus and advocacy. Mostly radio, but would love to move into the TV arena to reach more people. My advice would be to continue searching for different avenues to tell your story and share with the world. Be open to using different ways to reach different audiences.
I would love to share my story. I will reach out to you.
This is something i have tried to do. I want to do something surrounding the awareness month for Ankylosing Spondylitis. So far when I emailed magazines or the news I have received no response. What would be the best approach to get them interested?
Absolutely ! We engage in the media every week though our podcasting! We love sharing health insight with others and allow guests to share their own stories with our listeners. We are now heard in dozens of countries and by thousands of engaged listeners. We firmly believe podcasting is the way to reach the masses. Every week we discuss a new diagnosis so our listening audience will continue to grow.
I am going to this year!
When I “pitch” an idea for a guest blog or article, I have three or four solid ideas and the I let the editor decide which angle/story would be the best suited for their audience.